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Hope

Please help for "Hope"

Sometimes illness and disease hits close to home Kelly is married to Mark and his niece has inherited chronic disease known as Cystic fibrosis.

Help us find a cure for baby Virginia Blue! After a three year struggle and two heartbreaking miscarriages we were blessed on March 3, 2009 with our beautiful Virginia Blue. We have never been so happy in all our lives. She is the joy and happiness of our days. She lights up any room and could bring a smile to any face. She is nothing short of AMAZING! We love her so very much.

When Virginia Blue was 3 weeks old we got the worst news of our lives. Our Beautiful, long awaited daughter tested positive for CF. Nether of us have any family history of CF and were shocked and scared. After a week of crying and feeling overwhelmed we decided it was time to pull it together and fight for our daughter. We are beyond grateful to all of you for helping us work towards a cure for so many tiny angels suffering with this terrible disease.

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:

* clogs the lungs and leads to life-threatening lung infections; and * obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

We joined her team to find a cure and you can as well. Joining her team is as simple as using our services or by directly going to the Great Strides page by using this link.

Help for "Hope"

 

 


 

 

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In a house that looks from the outside much like any other home in Dos Vientos, a mother struggles every minute of every day to keep her son alive.

When 8-year-old Elijah isn't having a seizure, his mother, Terri Granard, is still on alert, watching and waiting as she has every day since Elijah was 6 months old, prepared to give lifesaving resuscitation.

"It's like waiting for a car crash that you know is going to happen," she said.

Elijah appeared to be healthy when he was born on Aug. 29, 2000, after a normal pregnancy, his mother said. He was welcomed into the family by his 1year-old bigger brother, Noah.

Then, on Feb. 18 the next year, Granard and her husband, Ryan, woke up to Elijah having a seizure.

"My husband asked, 'What's wrong with Elijah?'" she recalled.

His question wouldn't be answered for some time. The first event was thought to have been triggered by a fever. But the next day Elijah had another seizure, and "boatloads of testing with Xrays and blood tests" followed, according to his mother.

No cause for the seizures could be found.

Finally, a DNA survey with a chromosome analysis revealed that the baby had a condition called ring chromosome 14 syndrome, or ring 14. Elijah is one of 300 known cases in the world, his mother said. Ring 14 is a rare, noninherited genetic condition.

The medical community said the prognosis regarding Elijah's longevity was poor—that he would live only until age 2 or 3. In addition to the seizures he's had strokes.

In a few weeks Elijah will turn 9. Those who gave him just a few years to live didn't take into account the determination and love his family has for him.

Eli

His big brother is an "awesome, smart" fifth-grader who helps his brother a lot, Terri Granard said..

And one of the family dogs, a rescued Doberman, has, without training, learned to signal with one bark moments before a seizure occurs.

When Elijah has a seizure, which usually happens one to five times a day, he stops breathing, turns blue and becomes limp like a rag doll, his mother said. The family employs a fulltime nurse to help out with Elijah.

Sometimes he has days with no seizures.

"That's a really good day for our family," Granard said.

But when a seizure does occur, Elijah must be quickly revived. A device similar to a pacemaker, medically imbedded in his chest, stimulates nerves in the chest with electrical impulses. A magnet is used to swipe his chest for an extra jolt. CPR is also necessary.

When he's not having seizures, Elijah behaves mentally like a 1-year-old child due to brain damage from the lack of oxygen when he stops breathing during the seizures.

"He has suffered brain damage similar to a near-drowning victim," his mother said.

He watches the Wiggles on TV. He's fed through a tube. Elijah crawls but cannot walk. He's learning sign language, but every time he has a stroke he goes back to square one, his mom said.

"He is the happiest little boy despite his medical situation. He also has the most angelic face," Terri Granard said.

For more information, go to www.ring14.net.
 
We also donate to the Cystic fibrosis foundation:

http://www.cff.org/

People have asked us things such as:

     " Do you really donate to charity? Which ones?"    

     "How can I help contribute to and/or go to your charitable events?"

So, now to answer these wonderful questions:

Yes, of course we really do donate! What we do isn't all about us. We believe that businesses have a responsibility to give back. So, we give money each year to non-profit organizations whose missions we believe in. 

 

To contribute simply use our services. We set aside a portion of our profits each year to donate to a cause we believe in.

If you can't use our services and still want to contribute email us here:

 

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